{"id":3440,"date":"2021-11-24T17:18:30","date_gmt":"2021-11-24T16:18:30","guid":{"rendered":"https:\/\/elainternational.eu\/en\/?p=3440"},"modified":"2022-04-27T09:47:47","modified_gmt":"2022-04-27T07:47:47","slug":"symposium-27-11-2021","status":"publish","type":"post","link":"https:\/\/test.ela-event.com\/en\/2021\/11\/24\/symposium-27-11-2021\/","title":{"rendered":"Virtual SYMPOSIUM ELA International \u00ab CLINICAL TRIALS AND ETHICS \u00bb Saturday November 27th &#8211; 3:00 PM &#8211; 6:00 PM (CET)"},"content":{"rendered":"<h3 style=\"text-align: center;\"><span style=\"color: #e71d73;\">Virtual SYMPOSIUM ELA International<br \/>\n\u00ab CLINICAL TRIALS AND ETHICS \u00bb<br \/>\nSaturday November 27th, 2021<br \/>\n<\/span><\/h3>\n<p>ELA international organized an innovative symposium aiming to reflect how patients and their families can be involved in the various research projects that concern them, and to define the ethical rules that will guide ELA International in its partnerships with public or private laboratories.<\/p>\n<p>A voice was given to patients, families and caregivers, representative associations, and to health professionals, involved in clinical studies.<\/p>\n<p>This symposium international was translated into 5 languages (English, French, German, Italian, and Spanish).<\/p>\n<p>This international symposium placed \u201cthe patient\u201d at the heart of current research topics and will strengthen collaboration between doctors-researchers and patients concerned by leukodystrophy.<\/p>\n<p><span style=\"color: #e71d73;\"><u>On the program:<\/u><\/span><\/p>\n<ul>\n<li><span style=\"color: #e71d73;\">Gene Therapy for Metachromatic leukodystrophy and therapeutic trials in Adrenomyeloneuropathy: an ethical update<\/span><\/li>\n<li><span style=\"color: #e71d73;\">The results and valorisation of the studies: the benefits for patients<\/span><\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<h3><strong><span style=\"color: #e71d73;\">VIDEO OF SYMPOSIUM<\/span><br \/>\n<\/strong><\/h3>\n<p><a href=\"https:\/\/youtu.be\/OmPXLinqxVI\" target=\"_blank\" rel=\"noopener\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-3594 aligncenter\" src=\"https:\/\/elainternational.eu\/wp-content\/uploads\/2021\/01\/Englophone-2-300x171.png\" alt=\"\" width=\"200\" height=\"114\" \/><\/a><\/p>\n<p>&nbsp;<\/p>\n<p><a href=\"https:\/\/youtu.be\/p3DIVO9MNZw\" target=\"_blank\" rel=\"noopener\">\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 <img loading=\"lazy\" decoding=\"async\" class=\"\" src=\"https:\/\/elainternational.eu\/wp-content\/uploads\/2021\/11\/Allemand-e1639738584385.png\" width=\"170\" height=\"105\" \/><\/a><a href=\"https:\/\/youtu.be\/p3WiHWvfbCw\" target=\"_blank\" rel=\"noopener\"> \u00a0 \u00a0 \u00a0 <img loading=\"lazy\" decoding=\"async\" class=\"\" src=\"https:\/\/elainternational.eu\/wp-content\/uploads\/2021\/01\/Espagnol-e1639738980365.png\" width=\"166\" height=\"107\" \/><\/a><a href=\"https:\/\/youtu.be\/y9GSEC57a7A\" target=\"_blank\" rel=\"noopener\"> \u00a0\u00a0\u00a0 \u00a0 <img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-3576\" src=\"https:\/\/elainternational.eu\/wp-content\/uploads\/2021\/11\/Francais-e1639738442984.png\" alt=\"\" width=\"155\" height=\"106\" \/>\u00a0 \u00a0\u00a0 \u00a0 <img loading=\"lazy\" decoding=\"async\" class=\"\" src=\"https:\/\/elainternational.eu\/wp-content\/uploads\/2021\/01\/Italien-e1639738990138.png\" width=\"155\" height=\"106\" \/><\/a><\/p>\n<p>&nbsp;<\/p>\n<h2><a href=\"https:\/\/elainternational.eu\/en\/symposium2\/\"><span style=\"color: #e71d73;\"><strong><u>LEARN MORE<\/u><\/strong><\/span><\/a><\/h2>\n<p><a href=\"https:\/\/elainternational.eu\/en\/symposium2\/\"><img loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-3451 aligncenter\" src=\"https:\/\/elainternational.eu\/wp-content\/uploads\/2021\/11\/Affiche_sympo_2021_UK.jpg\" alt=\"\" width=\"378\" height=\"504\" srcset=\"https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Affiche_sympo_2021_UK.jpg 378w, https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Affiche_sympo_2021_UK-225x300.jpg 225w, https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Affiche_sympo_2021_UK-375x500.jpg 375w\" sizes=\"auto, (max-width: 378px) 100vw, 378px\" \/><\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Virtual SYMPOSIUM ELA International \u00ab CLINICAL TRIALS AND ETHICS \u00bb Saturday November 27th, 2021 ELA international organized an innovative symposium aiming to reflect how patients and their families can be involved in the various research projects that concern them, and to define the ethical rules that will guide ELA International in its partnerships with public [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":3455,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","disable_featured_image":false,"footnotes":""},"categories":[54],"tags":[],"class_list":["post-3440","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-international-en"],"rttpg_featured_image_url":{"full":["https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Syposium_12-2021-770x425-1.jpg",770,425,false],"landscape":["https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Syposium_12-2021-770x425-1.jpg",770,425,false],"portraits":["https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Syposium_12-2021-770x425-1.jpg",770,425,false],"thumbnail":["https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Syposium_12-2021-770x425-1-150x150.jpg",150,150,true],"medium":["https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Syposium_12-2021-770x425-1-300x166.jpg",300,166,true],"large":["https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Syposium_12-2021-770x425-1.jpg",770,425,false],"1536x1536":["https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Syposium_12-2021-770x425-1.jpg",770,425,false],"2048x2048":["https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Syposium_12-2021-770x425-1.jpg",770,425,false],"et-pb-post-main-image":["https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Syposium_12-2021-770x425-1.jpg",400,221,false],"et-pb-post-main-image-fullwidth":["https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Syposium_12-2021-770x425-1.jpg",770,425,false],"et-pb-portfolio-image":["https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Syposium_12-2021-770x425-1.jpg",400,221,false],"et-pb-portfolio-module-image":["https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Syposium_12-2021-770x425-1.jpg",510,281,false],"et-pb-portfolio-image-single":["https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Syposium_12-2021-770x425-1.jpg",770,425,false],"et-pb-gallery-module-image-portrait":["https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Syposium_12-2021-770x425-1.jpg",400,221,false],"et-pb-post-main-image-fullwidth-large":["https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Syposium_12-2021-770x425-1.jpg",770,425,false],"et-pb-image--responsive--desktop":["https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Syposium_12-2021-770x425-1.jpg",770,425,false],"et-pb-image--responsive--tablet":["https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Syposium_12-2021-770x425-1.jpg",770,425,false],"et-pb-image--responsive--phone":["https:\/\/test.ela-event.com\/wp-content\/uploads\/2021\/11\/Syposium_12-2021-770x425-1.jpg",480,265,false]},"rttpg_author":{"display_name":"Herv\u00e9 PIERRAT","author_link":"https:\/\/test.ela-event.com\/en\/author\/herve\/"},"rttpg_comment":0,"rttpg_category":"<a href=\"https:\/\/test.ela-event.com\/en\/category\/international-en\/\" rel=\"category tag\">International<\/a>","rttpg_excerpt":"Virtual SYMPOSIUM ELA International \u00ab CLINICAL TRIALS AND ETHICS \u00bb Saturday November 27th, 2021 ELA international organized an innovative symposium aiming to reflect how patients and their families can be involved in the various research projects that concern them, and to define the ethical rules that will guide ELA International in its partnerships with public&hellip;","_links":{"self":[{"href":"https:\/\/test.ela-event.com\/en\/wp-json\/wp\/v2\/posts\/3440","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/test.ela-event.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/test.ela-event.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/test.ela-event.com\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/test.ela-event.com\/en\/wp-json\/wp\/v2\/comments?post=3440"}],"version-history":[{"count":60,"href":"https:\/\/test.ela-event.com\/en\/wp-json\/wp\/v2\/posts\/3440\/revisions"}],"predecessor-version":[{"id":3621,"href":"https:\/\/test.ela-event.com\/en\/wp-json\/wp\/v2\/posts\/3440\/revisions\/3621"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/test.ela-event.com\/en\/wp-json\/wp\/v2\/media\/3455"}],"wp:attachment":[{"href":"https:\/\/test.ela-event.com\/en\/wp-json\/wp\/v2\/media?parent=3440"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/test.ela-event.com\/en\/wp-json\/wp\/v2\/categories?post=3440"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/test.ela-event.com\/en\/wp-json\/wp\/v2\/tags?post=3440"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}