{"id":11,"date":"2018-10-09T15:46:20","date_gmt":"2018-10-09T13:46:20","guid":{"rendered":"http:\/\/elainternational.eu\/?page_id=11"},"modified":"2022-06-08T08:04:37","modified_gmt":"2022-06-08T06:04:37","slug":"recherche","status":"publish","type":"page","link":"https:\/\/test.ela-event.com\/en\/recherche\/","title":{"rendered":"Scientific Committee"},"content":{"rendered":"

Scientific Committee<\/span><\/h1>\n
\n

Ukraine – ELA Scientific committee statement<\/span><\/h3>\n

\u201cThe European Leukodystrophy Association international scientific advisory board wishes to express its concern and sympathy for people and families affected by leukodystrophy and the war in Ukraine. We understand the great difficulty of taking care of children with rare disease, especially without access to proper hospital care or medicines.<\/p>\n

Our board members will endeavour to provide direct medical support to refugees as well as hospitals and healthcare providers in the region that can benefit from specialist medical advice on care of leukodystrophy patients.<\/p>\n

This is a time of empathy and unity for all people and families affected by leukodystrophy\u201d<\/p>\n

\n

The role and procedure of ELA International Scientific Committee<\/span><\/h3>\n

\"\"<\/p>\n

The ELA International Scientific Committee regroups 15 members.<\/strong><\/p>\n

The president, Pr. Florian Eichler<\/strong> (MassGeneral Hospital for Children \u2013 Boston, USA), is assisted by a vice-President, Dr. Caroline Sevin<\/strong> (H\u00f4pital Bic\u00eatre, Le Kremlin-Bic\u00eatre, France).<\/p>\n

The members serve for 3 years. A third of the committee will be renewed every year. The Scientific Committee includes international experts of leukodystrophies who meet twice a year and whenever necessary.<\/p>\n

The Scientific Committee develops the rules of procedure related to the call for proposals and establishes the content of the call according to the guidelines established by ELA International. The President, in connection with the ELA International Research Department, chooses and updates the list of experts solicited to review the projects submitted to ELA International.<\/p>\n

The Scientific Committee evaluates the research projects submitted to ELA International following the annual call for proposals with the help of external reviews, and identify the best projects.
\nIt also evaluates projects outside of the call for proposals.<\/p>\n

The Scientific Committee\u2019s mission is also to encourage exchanges between its members.<\/p>\n

\n
<\/a> <\/div><\/div><\/td>

Florian EICHLER<\/strong>
Nationality: American<\/p><\/div><\/div><\/td>

President of the Scientific Committee
MD<\/p><\/div><\/div><\/td>

Pediatric and Adult Neurology
Director of the Leukodystrophy Service
Massachusetts General Hospital
Boston, MA, USA<\/em><\/p><\/div><\/div><\/td><\/tr>

<\/a> <\/div><\/div><\/td>

Caroline SEVIN<\/strong>
Nationality: French<\/p><\/div><\/div><\/td>

Vice-presidente
MD<\/p><\/div><\/div><\/td>

Pediatric Neurology
Leukodystrophy Reference Center
Pediatric Neurology department
Bic\u00eatre Hospital
Kremelin-Bic\u00e8tre, France<\/em><\/p><\/div><\/div><\/td><\/tr>

<\/a> <\/div><\/div><\/td>

Elena AMBROSINI<\/strong>
Nationality: Italian<\/p><\/div><\/div><\/td>

PhD<\/p><\/div><\/div><\/td>

Neurobiology
Department of Cell Biology and Neuroscience
Instituto Superiore di Sanit\u00e0
Rome, Italy<\/em><\/p><\/div><\/div><\/td><\/tr>

<\/a> <\/div><\/div><\/td>

Enrico BERTINI<\/strong>
Nationality: Italian<\/p><\/div><\/div><\/td>

MD<\/p><\/div><\/div><\/td>

Professor of Pediatric Neurology
Head of the Neuromuscular and Neurodegenerative disease unit
Laboratory of Molecular Medicine
Ospedale Bambino Gesu Research Hospital
Rome, Italy<\/em><\/p><\/div><\/div><\/td><\/tr>

<\/a> <\/div><\/div><\/td>

Nathalie CARTIER<\/strong>
Nationality: French<\/p><\/div><\/div><\/td>

MD<\/p><\/div><\/div><\/td>

Director of research INSERM
Institut for Brain and Spine (ICM)
La Piti\u00e9 Salp\u00eatri\u00e8re Hospital
Paris, France<\/em><\/p><\/div><\/div><\/td><\/tr>

<\/a> <\/div><\/div><\/td>

Raul ESTEVEZ<\/strong>
Nationality: Spanish<\/p><\/div><\/div><\/td>

PhD<\/p><\/div><\/div><\/td>

Professor of Physiology
University of Barcelona
Barcelona, Spain<\/em><\/p><\/div><\/div><\/td><\/tr>

<\/a> <\/div><\/div><\/td>

Samuel GROESCHEL<\/strong>
Nationality: German<\/p><\/div><\/div><\/td>

MD, PhD<\/p><\/div><\/div><\/td>

Pediatric Neurology
University Children\u2019s Hospital
Tuebingen, Germany<\/em><\/p><\/div><\/div><\/td><\/tr>

<\/a> <\/div><\/div><\/td>

David HUNT<\/strong>
Nationality: English<\/p><\/div><\/div><\/td>

MD, PhD<\/p><\/div><\/div><\/td>

Molecular Biology and Inflammatory Diseases
University of Edinburgh
Edinburgh, UK<\/em><\/p><\/div><\/div><\/td><\/tr>

<\/a> <\/div><\/div><\/td>

Stephan KEMP<\/strong>
Nationality: Dutch<\/p><\/div><\/div><\/td>

PhD<\/p><\/div><\/div><\/td>

Academic Medical Center Principal Investigator
Genetic Metabolic Diseases Department
University of Amsterdam
Amsterdam, The Netherlands<\/em><\/p><\/div><\/div><\/td><\/tr>

<\/a> <\/div><\/div><\/td>

Tanja KUHLMANN<\/strong>
Nationality: German
<\/p><\/div><\/div><\/td>

<\/p><\/div><\/div><\/td>

Associate Professor and Senior Neuropathology Consultant
Institute of Neuropathology
University Hospital of M\u00fcnster
M\u00fcnster, Germany<\/em><\/p><\/div><\/div><\/td><\/tr>

<\/a> <\/div><\/div><\/td>

Wolfgang KOEHLER<\/strong>
Nationality: German<\/p><\/div><\/div><\/td>

MD<\/p><\/div><\/div><\/td>

Clinical neurology
MZEB
University Hospital Leipzig
Leipzig, Germany<\/em><\/p><\/div><\/div><\/td><\/tr>

<\/a> <\/div><\/div><\/td>

Yann NADJAR<\/strong>
Nationality: French<\/p><\/div><\/div><\/td>

MD, PhD Neurologist<\/p><\/div><\/div><\/td>

Neuro-Genetics and Metabolism
Lysosomal Diseases Reference Center
La Piti\u00e9 Salp\u00eatri\u00e8re Hospital
Paris, France<\/em><\/p><\/div><\/div><\/td><\/tr>

<\/a> <\/div><\/div><\/td>

David ROWITCH<\/strong>
Nationality: American<\/p><\/div><\/div><\/td>

MD, PhD, ScD<\/p><\/div><\/div><\/td>

Pediatric Neurology
Professor and Head of Department University of Cambridge Adjunct Professor of Pediatrics and Neurosurgery, UCSF Cambridge, UK<\/em><\/p><\/div><\/div><\/td><\/tr>

<\/a> <\/div><\/div><\/td>

Adeline VANDERVER<\/strong>
Nationality: American<\/p><\/div><\/div><\/td>

MD<\/p><\/div><\/div><\/td>

Neurology Programm Director of the Leukodystrophy Center of Excellence
The Children\u2019s Hospital of Philadelphia
Philadelphia, PA, USA<\/em><\/p><\/div><\/div><\/td><\/tr>

<\/a> <\/div><\/div><\/td>

Nicole WOLF<\/strong>
Nationality: Dutch<\/p><\/div><\/div><\/td>

MD, PhD<\/p><\/div><\/div><\/td>

Pediatric Neurology, Neurosciences
Neurology Center for Childhood White Matter Disorders
VUmc \u2013 VU University Medical Center Amsterdam
Amsterdam, The Netherlands<\/em><\/p><\/div><\/div><\/td><\/tr><\/tbody><\/table>\n<\/div>\n\n","protected":false},"excerpt":{"rendered":"

Scientific Committee Ukraine – ELA Scientific committee statement \u201cThe European Leukodystrophy Association international scientific advisory board wishes to express its concern and sympathy for people and families affected by leukodystrophy and the war in Ukraine. We understand the great difficulty of taking care of children with rare disease, especially without access to proper hospital care […]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","disable_featured_image":false,"footnotes":""},"class_list":["post-11","page","type-page","status-publish","hentry"],"rttpg_featured_image_url":null,"rttpg_author":{"display_name":"Herv\u00e9 PIERRAT","author_link":"https:\/\/test.ela-event.com\/en\/author\/herve\/"},"rttpg_comment":0,"rttpg_category":null,"rttpg_excerpt":"Scientific Committee Ukraine – ELA Scientific committee statement \u201cThe European Leukodystrophy Association international scientific advisory board wishes to express its concern and sympathy for people and families affected by leukodystrophy and the war in Ukraine. We understand the great difficulty of taking care of children with rare disease, especially without access to proper hospital care…","_links":{"self":[{"href":"https:\/\/test.ela-event.com\/en\/wp-json\/wp\/v2\/pages\/11","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/test.ela-event.com\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/test.ela-event.com\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/test.ela-event.com\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/test.ela-event.com\/en\/wp-json\/wp\/v2\/comments?post=11"}],"version-history":[{"count":55,"href":"https:\/\/test.ela-event.com\/en\/wp-json\/wp\/v2\/pages\/11\/revisions"}],"predecessor-version":[{"id":4227,"href":"https:\/\/test.ela-event.com\/en\/wp-json\/wp\/v2\/pages\/11\/revisions\/4227"}],"wp:attachment":[{"href":"https:\/\/test.ela-event.com\/en\/wp-json\/wp\/v2\/media?parent=11"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}