ELA families need our support Today, ELA families are fighting a double battle: coping with the disease affecting their children and protecting them from the Covid-19. In addition to the constraints of increased confinement at home, there is the added burden of daily...
World experts on leukodystrophies brought together by ELA International to advance research. ELA International has brought together about thirty eminent researchers from different countries (United States, Italy, Spain, United Kingdom, Germany, Holland, France,etc.)...
Leuconnect multilingual Already accessible in French and English, the Leuconnect platform is now open in 3 new languages. With the financial support of the Roche Foundation, it is now available in Spanish, Italian and German. The members of the different ELA branches...
In front of several hundred people gathered for the event, the 14-year old girl, who is a karting enthusiast, hit the gas to climb up a ramp and then fell 5.5 metres further down, passing over two cars. The feat was partly achieved thanks to her father Didier, a...
On Wednesday 6 February 2019, as part of Olympic and Paralympic Week, all the students of Academic City Elementary ran for the ELA association, which works to combat leukodystrophy, a rare genetic disease. Students from CP to CM2 put on their trainers to “beat...
On Friday 23 March 2018, Guy Alba (President of ELA International), Pascal Prin (President of ELA France) and Laurent Caredda (President of Almerys) met in Paris to sign a partnership agreement between ELA and Almerys (a health data hosting company). This contract is...
![ELA International [test]](https://test.ela-event.com/wp-content/uploads/2021/01/ELA_International.png)